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| Tweet Topic Started: Sep 29 2007, 01:48 AM (921 Views) | |
| ed-gracetoday | Sep 29 2007, 01:48 AM Post #1 |
Elder
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DD is using CPAP. She asked me to ask you this:
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| Deleted User | Sep 29 2007, 06:34 AM Post #2 |
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Deleted User
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:morn: I noticed a difference after the first night sleeping with CPAP. If she does not notice a difference soon - I think within the next few days, she should talk to her doctor. The pressure on her machine may not be set correctly and not fully correcting her sleep apnea. |
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| ed-gracetoday | Sep 29 2007, 06:54 AM Post #3 |
Elder
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I certainly appreciate your quick reply, Dave. When the health care dropped it off, that is all he did. It was my understanding they explained it and adjusted it. Yesterday her husband woke her up because the mask had slid off and the machine woke him up. I told her she is going to have to work with the provider and not be so easily discouraged. |
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| ed-gracetoday | Sep 30 2007, 11:15 AM Post #4 |
Elder
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Her problem in my guestimation is that no chin strap was provided. Did they with you are were you supposed to ask after that discovery?
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| Deleted User | Sep 30 2007, 03:34 PM Post #5 |
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Deleted User
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Our masks have good head straps and are very comfortable. I know there are optional chin straps available to help keep the mouth closed, which is very important. Your daughter definately needs to be assertive with her provider and get a mask that fits properly. It means all the difference in the world, as people won't wear the mask all night, or at all, if it is not comfortable. |
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| ed-gracetoday | Oct 1 2007, 12:42 AM Post #6 |
Elder
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I sure appreciate your replies and so does, Michele. She was quite discouraged and is now waiting on a chin strap. :th: |
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| ed-gracetoday | Oct 2 2007, 05:11 AM Post #7 |
Elder
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Update from Michele.
Anybody have frustration stories? |
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| Deleted User | Oct 2 2007, 06:24 AM Post #8 |
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Deleted User
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:morn: If our masks are not on correctly, air leaks out and there is lots of noise. If this happens in the night to Fayrda or me, we help eachother get the mask on correctly. That is frustring, and over the years we have learned to make sure our masks are on tightly before going to sleep. Another piece of advice I just though of...Michelle should make sure she is really tired and ready to fall asleep before putting on the mask and machine. If not, it can cause frustration as she breathes against the pressure. We have learned the right time to put the mask on before falling asleep. Just have to make sure to do it, and not fall asleep without the mask and machine on. It sounds like Michelle should wait for the chin strap. Hopefully she will get that soon, and the help she needs to get the mask and machine working for her. |
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| ed-gracetoday | Oct 2 2007, 07:17 AM Post #9 |
Elder
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Thanks, Dave. I just sent that to her. I can't encourage her from experience, but you sure have. :th: |
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| Deleted User | Oct 2 2007, 07:23 AM Post #10 |
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Always happy to help a good friend. :) |
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| ed-gracetoday | Oct 3 2007, 12:59 AM Post #11 |
Elder
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Dave, she is leaving today for vacation so the experience will be delayed, but she said to say this to you.
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| Deleted User | Oct 23 2007, 06:22 AM Post #12 |
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Deleted User
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I just lost a fairly LONG reply...Oh well...probably was WAY TOO WORDY anyway! YES...I would suggest waiting until you are ready to turn the lights out! I have between 2000 and 3000 hours clocked on my machine. I didn't know there is a chin strap available. But I have experienced the DRY MOUTH that results from having your mouth open. IT IS NOT pleasant to wake up to that!!! But...it is temporary! I would say that it will take a considerable amount of time using the c-pap machine consistantly before you might "feel" a difference....maybe not so long if your apnia is more severe. |
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| ed-gracetoday | Oct 23 2007, 06:26 AM Post #13 |
Elder
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Thank you so much for replying, Connie. I will forward your answer. Michele still struggles and I appreciate the support that I just can't give by experience, through the grace instead of my friends. :bless: |
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| Deleted User | Oct 23 2007, 07:35 AM Post #14 |
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:wave: Hello, CowMom!! It's very good to see you. I hope you can drop in and visit again soon, and maybe stay awhile. :) :bless: |
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| ed-gracetoday | Dec 24 2007, 07:14 AM Post #15 |
Elder
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Just an update. Michele will be getting the dental appliance. She said the dentist told her he has never seen a tonque as thick as heres and the appliance should help whereas the mask didn't. We'll see in a few weeks. |
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| Deleted User | Dec 24 2007, 10:42 AM Post #16 |
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Deleted User
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Thanks for the update, Candy. I pray the dental appliance will work for Michelle. A co-worker recently had drastic surgery for sleep apnea - he had the extra skin in his throat removed as well as his uvula. I told him I didn't think they could remove the 'hangy ball', but they did and it has proved successful for him. Lots of different treatments now. The CPAPs are still working for all of us. |
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| Banned account | Dec 24 2007, 11:21 AM Post #17 |
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Trustee
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Candy, thanks for the update. I hope it works for her. :hug: |
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| ed-gracetoday | Dec 26 2007, 08:57 AM Post #18 |
Elder
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Dave and Barbara, forwarded your replies and a BIG thank you from Michele. |
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